General Info

Carcinoid Cancer Awareness NetworkInformation & encouragement for Carcinoid & other Neuroendocrine Cancer patients, their families. Speak to a patient or caregiverWHAT IS CARCINOID CANCER? Carcinoid is part of a group of tumors called neuroendocrine tumors that grow in the hormone producing cells, is listed with the National Organization of Rare Disorders. Because neuroendocrine ( NET ) cancer is considered rare and due to a lack of public awareness the disease has had a low priority for medical research. Current studies suggest that Carcinoid and Neuroendocrine tumors are not as rare once thought. Over 11, 000 new patients are diagnosed each year and as many as 125, 000 patients are living in the US today- AND the number of diagnoses is increasing by more than 5% annually. Carcinoid/NETs are also regularly overlooked during the diagnostic process. Many patients go untreated for years and have been told the have another disease. However, due to the generosity and selfless effort of many people, progress IS being made! If the tumors are found early and you get proper treatment, you can live a long life. There are many 20 year survivors living in the USA. Failure to diagnose the disease and provide proper treatment, however, has the most serious consequence.WHO IS CCAN? We are a non-profit charity whose mission is to intensify awareness of Neuroendocrine Tumors & Carcinoid Cancer in the medical community and general public around the world. CCAN also assists patients, caregivers and support groups worldwide by providing access to important & updated information about the disease. Through the years CCAN has produced 17 conferences. Many are available to view on our website. DVD's & CD ROMS are available. Our toll free phone support line is answered by a patient and caregiver. Call today for your free information packet. We also provide funding for research into Carcinoid Cancer and other Neuroendocrine tumors.WHY IS THE ZEBRA OUR MASCOT? In medical school, doctors are taught "when hearing hoofbeats, think horses, not zebras." Carcinoid Cancer & Neuroendocrine Tumors has been thought of as 'rare'and therefore may be considered a zebra.Are you interested in starting a support group in your area? A support group leader that needs support? Please click here to visit our other site